Some Helpful Resources

 Lewy Body Dementia Association

Lewy Body Dementia Resource Center

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Still Keeping On

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  So it's been quite a while since I've posted here.  It seems like a lot has happened - both good and not so good.  Summer 2024 was awesome - I felt really strong and was very active both mentally and physically. Toward the end of August and through September, however, the batteries started running out. I noticed I began forgetting people - not a lot and not always. I recognize faces. I look at people and know I should know who they are, but I do not always remember their names or make any connections. even if Michele tells me who they are I often still don't make a connection. I ran into a neighbor I had lived next to for 30 years before we moved and could not remember his name.  It's very frustrating and actually quite maddening at times.  My confusion started getting worse about the same time. I got lost several times just one street over from my house. Thankfully Pippin was with me and kept pulling me in the right direction. It's a little sad to realize tha...
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A Former Educator's Trip Down Memory Lane

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For the students in SAU 58, where I was a superintendent for 8 years, an elementary principal for 5, a school board member for 8, and a student for 13 - this is the first day of school. It has felt very strange for me not to have anything to do attached to education on the first day of school. So I thought I would take a few minutes and stroll down memory lane a bit. While there a few potholes and too many missing chunks, I wanted to capture my thoughts before it all disappears. I've spent most of my adult life as an educator - first as a middle school classroom teacher and then as an administrator. I've had lots of different roles and many years in education, but I would have to say my favorite time was as a teacher. My biggest regret is that I did not spend more years in the classroom before I made the move to administration.  I loved working with middle school kids because they could still be excited about learning and could have fun. Sometime I had to drag them to the fun a...
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Lewy is Being Okay (for now...)

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  I realized today that I had not posted anything here in a while, so I wanted to be sure to include the good as well as the bad and the ugly. Walking with Lewy is a rollercoaster, so when things are going well I really just try to enjoy the ride always knowing the downs are going to come at some point. As I think I mentioned in my last entry, I physically I have been feeling great. I am able to walk using just a cane for a little balance except when I'm over tired and am able to do more around the house than I have been. I do things more slowly and can only focus on one thing at a time, but at least they are getting done! As with everything with Lewy, however, there are trade offs. I find myself losing concentration quickly - especially when it involves conversation or talking. It is becoming harder to follow conversations or to listen while others around me are talking. I find myself drifting off - sometimes even closing my eyes because I feel exhausted from trying to concen...
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