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Showing posts from July, 2025

A Day in the Life with Lewy

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Some people imagine living with dementia means every day is the same — slow, foggy, confusing. But with Lewy Body Dementia, every day is a new negotiation between what I planned and what my brain and body will actually allow. Here’s a glimpse into what that looks like for me right now. ☀️   Mornings: Faith, Fog, and Finding My Feet Opening my eyes in every day is always a revelation – I never know how it’s going to go!  While rare mornings find me clear-headed, most days I wake foggy – s ometimes very foggy. I love sunny mornings, because I can open the blinds next to my bed and the sun streams in, often giving me a much-needed perk.    An open window allows me to hear the birds when they start their day, and the spring brought the smell of the lilac bush right outside my window.    Now the summer brings the smell of freshly cut grass, or in the evenings sometimes the unexpected skunk cameo!  Many days it takes quite a bit of time for my brain to clear...